Supporting with respect
- Let the patient speak first and add only what is needed.
- Get the patient's authorization before sharing their information.
- Ask the patient what they want you to say at the visit.
- Observe changes and describe them without making diagnoses.
Organizing information
- Write the questions before each visit.
- Document the instructions received and their date.
- Keep supplies in one place.
- Repeat aloud what you understood to confirm it.
Dividing responsibilities
Write who will do each task and confirm it with the family.
- Appointments and transportation(fill in this space on the printed version)
- Medications and supplies(fill in this space on the printed version)
- Communication with the treating team(fill in this space on the printed version)
- Support at home(fill in this space on the printed version)
- Relief for the main caregiver(fill in this space on the printed version)
Caring for the caregiver
- Recognize fatigue as a signal, not a failure.
- Ask for relief before exhaustion.
- Keep your own health appointments.
- Seek emotional support when you need it.
- Contact the treating team when care at home becomes hard to sustain.
Important contacts
- Main professional(fill in this space on the printed version)
- Nursing or home care(fill in this space on the printed version)
- Pharmacy(fill in this space on the printed version)
- Supporting family member(fill in this space on the printed version)
- Emergencies: 911(fill in this space on the printed version)